Purple Pansies team during their 2020 virtual gala event that raised over $1.2 million. Their motto for the gala was, “Cancer Doesn’t Stop and Neither Do We.”

Purple Pansies was founded in 2009 following the death of Maria Fundora’s mother from pancreatic cancer. When Maria’s mother was diagnosed with Stage 4 pancreatic cancer and died three months later, Maria felt called to raise awareness and crucial research funding for this chronically underfunded but deadly disease. She chose the name Purple Pansies because she thought, “What grows in the winter and survives always? Pansies – they have the DNA to survive tough conditions.” Purple Pansies became a 501c3 organization in 2017 and are a volunteer organization.

Purple Pansies is dedicated to making a difference in the lives of individuals and families fighting pancreatic cancer through humanitarian assistance and research funding. The funds they raise are used for research, clinical trials, early detection, and to aide families in our community who have a family member suffering from pancreatic cancer and can financially use their help.

Since March, Purple Pansies has been helping other nonprofits and frontline heroes during COVID-19. They have helped deliver over 1,000 meals to hospitals, Kroger grocery stores, survivors of pancreatic cancer, and Safehouse Outreach in Atlanta. They also partnered with Operation Smile and local high school students to deliver meals to hospitals of their choice.

Purple Pansies, like most nonprofits, had to switch their annual gala from an in-person event to a virtual event, but their motto was, “Cancer Doesn’t Stop and Neither Do We.” With the help of many wonderful and generous donors, corporate partners, and a donor that was willing to match any amount up to $600,000 that they raised, Purple Pansies raised over $1.2 million and are continuing their efforts and campaign through the end of December.

Purple Pansies is gearing up for pancreatic cancer awareness month. Maria owns a restaurant in Alpharetta, GA, called Casa Nuova Italian Restaurant, and one day during the month she will donate a percentage of all sales to Purple Pansies. They also participate in a Giving Tuesday in December, and the entire staff of Casa Nuova is very involved with the organization and often volunteer their time during Purple Pansies events. In the next few months, they’re very excited to finalize a Purple Pansies scholarship for children of a parent or guardian that has been diagnosed with pancreatic cancer and needs financial help to attend school.

Purple Pansies is in the process of changing their logo so individuals and businesses know their non-profit is all about pancreatic cancer. Purple Pansies states that pancreatic cancer is the one cancer no one wants to talk about, and they feel it’s because when most people are diagnosed, it is already Stage 4 and feel hopeless. They are very supportive of the WPCC’s efforts to continue awareness education around knowing the risks and symptoms of pancreatic cancer. They’re excited to hopefully attend the WPCC conference next year and be more involved with the organization.

For the fifth consecutive year, the Pancreatic Cancer Association (ACANPAN) and the Spanish Pancreatology Association (AESPANC) announce the Carmen Delgado / Miguel Pérez-Mateo Research Grants against pancreatic cancer.

Asociación Cáncer de Páncreas is the first Spanish association dedicated exclusively to Pancreatic Cancer. ACANPAN was founded in January 2015 from the experience of two patients, Carmen and Olga, who were determined to ensure that this disease diagnosis ceases to be a lifelong battle. This association promotes activities that encourage Pancreatic Cancer research and informs and supports patients and their families. ACANPAN is an open door to all patients, relatives of patients, doctors, researchers, nutritionists, psychologists, and all others related to this disease. All members of this association are volunteers who collaborate in their free time to help support this global cause.

The bulk of their funds go to research against Pancreatic Cancer through the different grants they award each year. In Spain, only 2% of official grants are allocated to researching pancreatic cancer. For this reason, ACANPAN (Pancreas Cancer Association) and AESPANC (Spanish Pancreatology Association), with the support of multiple small and large sponsors and the efforts of many volunteers, carried out the initiative of a City Race to obtain funds for the research against pancreatic cancer.

This year, they are offering two grants of 97.500€ for clinical and basic research projects. Grantees, will be selected among the 43 projects submitted by the most prestigious Spanish researchers. The award ceremony will take place on World Pancreatic Cancer Day.

Israeli team running to defeat Pancreatic Cancer.

The Israeli Association for Pancreatic Cancer is a non-profit organization. The association was founded in August 2019, by a group of volunteers who have been exposed to pancreatic cancer, in various ways. Among them are family members of past and present patients — all mobilized to work together for a common goal. The team at LoveLove has dedicated their time and energy working for the community of pancreatic cancer patients and their families. The organization is part of the international community for the fight against pancreatic cancer, WPCC.

The goals of the association:

  • Increasing awareness of the disease and symptoms among the Israeli public.
  • Access to reliable information in Hebrew about the disease, treatment methods and innovations in the field.
  • Providing support, guidance and assistance to patients and families.
  • Raising donations for the fight against pancreatic cancer in Israel.
The KEFI team at an event to raise cancer awareness.

 

The Athens Association of Cancer Patients “KEFI” was established in spring 2004 by cancer survivors who decided to dedicate their time and spirit to support cancer patients and their families.

What’s in a name?

Kefi (κέφι) in Greek means gusto or zeal; taking after its namesake, KEFI aims at changing the common view that disease can wear out both the patients’ body and psyche. This premise is challenged daily by all our members offering moral support to anyone fighting with cancer.

The driving idea behind KEFI is to offer patient support that goes beyond simply going through the motions. KEFI has the following principles:
To face the social stigma associated with the disease and its treatment.
To develop a spirit of solidarity and mutual support in favor of the psychological and social rehabilitation of the oncological patients.
To raise awareness of cancer prevention and treatment and to ultimately communicate the message that cancer is not invincible.

Staying true to these principles, KEFI offers psychological and social support to cancer patients and their family and trains volunteers to develop skills for supporting patients and caregivers.
Every year KEFI hosts various conferences and seminars, raising awareness of medical developments on cancer treatment and cancer prevention.  The most important project of KEFI, “Support @Home”, focuses on the provision of psychosocial support by specialized psychologists and social workers to terminal and/or disabled patients in their homes. KEFI also offers gymnastics classes for cancer patients to help them cope with their harsh therapies and weakened body, as well as other activities. KEFI is a member of multiple umbrella-organizations, namely CML Advocates Network, DiCE, ECPC, ENGAGe, EULAP, LuCE, WPCC, and collaborates with the German organization Outdoor Against Cancer (OaC). KEFI, is keen on raising awareness of pancreatic cancer, and has launched a special application (Pancare for both Android and IOS) and website www.pancare.gr for Greek patients. We will be delighted to join forces with the WPCC, which is an excellent global forum to trade ideas and provide and share support in the form of know-how, visibility and best practices. Our goal is to achieve an even greater reach to cancer patients and a more meaningful impact through a tightly knit collaboration with the WPCC.

The Oltre la Ricerca Team

Oltre la ricerca is a non profit organization founded in Rimini (northern Italy) in 2012 by Francesca Gabellini, after the loss of her husband Luca, affected by pancreatic cancer. Luca was 42 years old when he passed away, leaving a 6 month old son. Francesca experienced many issues during Lusa’s illness and she is now determined to turn on the light for pancreatic cancer patients.

We are a charity that creates a bridge between pancreatic cancer patients and institutions, hospitals, general practitioners, dietitians, psychologists and surgeons. It has been shown in other cancers that increasing awareness of the disease can have a very strong impact on the ability to manage the illness.

Oltre la ricerca is proud of our volunteers that actively share good practice, proper life style (such as healthy diet and fiscal activity), early detection strategies and cooperation between hospitals and territory in order to support pancreatic cancer’s family. Our fundraising is based on show cooking and local markets

Oltre la ricerca’s main objectives are to:

  • Provide nutritional support and recipes Encourage an open dialogue between general practitioners, surgeons, oncologists and patients
  • Provide grants for case manager nurses and/or dietitians

Oltre la ricerca proudly belongs to World Pancreatic Cancer Coalition because sharing information under international cooperation is the right way to win the battle. The more in contact we are, the faster we can obtain significant results for patients. This is our hope and our desire, we need to open our minds and trust each other.

August 2018 NIPanC launch at The Mater Hospital Belfast attended by Jamie Dornan Patron, James Dornan President & Jess Dornan Lynas

 

NIPanC was launched in 2018 by our patron, Jamie Dornan, who had himself lost his mother, Lorna, to the disease.

The strength of NIPanC lies in it bringing together individuals who have suffered from pancreatic cancer, families with direct experience of its impact and medical professionals dealing with this condition.

NIPanC has three objectives: increasing public and professional awareness of Pancreatic Cancer; funding research; and supporting patients with Pancreatic Cancer and their families – to ensure that they never walk alone.

Our initial focus has been on increasing awareness. In Northern Ireland more than 250 people a year die of pancreatic cancer (in a 1.8 million population) yet public knowledge of the disease is extremely low.

As a young organisation NIPanC has much to learn. The great value of the WPCC is its diverse membership and everyone’s willingness to share information, advice and their experiences. Working in partnership we can do so much more than we can working apart!

Our agenda for the next year will undoubtedly be skewed by the coronavirus pandemic. What really excites me about the future is the prospect of engaging with colleagues in the WPCC to draw out new ideas on how we can better fight pancreatic cancer and support those individuals and families affected by it.

Our enduring message must be one of hope. A hope firmly underpinned by an increasingly professional approach to funding research, increasing awareness and practical and empathetic support for affected by pancreatic cancer.

The Board of ELLOK and representatives of its member organizations met with the President of the Hellenic Republic Prokopios Pavlopoulos.

 

Hellenic Cancer Federation – ELLOK is an “umbrella” organization established in 2016 aiming to unite patients, their caregivers, healthcare professionals, cancer hospitals, politicians, the media and the public, towards the improvement of cancer care, cancer prevention, cancer survivorship, rehabilitation and reintegration of cancer patients into social life and work.

Today, ELLOK represents 38 cancer patient organisations covering all cancers, common and rare, from all over Greece. It is the powerful & documented voice of cancer patients and survivors. The vision of ELLOK is for integrated, timely and affordable cancer and health care for all cancer patients, striving for excellent diagnosis, treatment, psycho-social support, rehabilitation and reintegration. ELLOK’s mission is to join forces with all cancer patients, volunteers and friends to advocate for the individual and collective rights of cancer patients, their caregivers and their family, for the improvement of cancer and health care and for increased funding for cancer research.

According to Globocan 2018, the estimated number of new pancreatic cancer cases in Greece was 2175 and 2031 of them will not survive. Since 2014, ELLOK, member of the ΕCPC-European Cancer Patient Coalition, actively participates in Pancreatic Cancer Europe, the European Multi-Stakeholder Platform on Pancreatic Cancer and the World Pancreatic Cancer Coalition. There is no dedicated pancreatic patient support group in Greece and ELLOK aims to raise pancreatic cancer awareness of the general public, the general practitioners for the early referral of patients and of the politicians for supporting early detection and research. ELLOK translated informative material/infographics in Greek and supports its members in relevant campaigns throughout the country.

EuropaColon Slovakia was founded in May 2007 as a nonprofit organization for patients with colorectal carcinoma and their families. Epidemiological data for cancer and years of experiences with patients motivated the organization to expand its target, and in 2014, EuropaColon Slovakia joined the European Pancreatic Cancer Multi-Stakeholders Platform. At that time, the organization also established a new alliance, “Say No To Pancreatic Cancer” in Slovakia. The mission is to spread awareness and evidence-based facts about pancreatic cancer prevention, as well as the benefits of early detection. The organization lobbies for availability of diagnosis and new treatments for patients with pancreatic cancer.

For those affected by cancer, the organization provides a helpline and special personal psychosocial support in patient support centers in two major oncological institutes in Slovakia. Its volunteers, former patients, are professionally prepared to support newly diagnosed patients in those centers two times per week and mostly discuss psychological problems, social issues, treatment, side effects and nutrition after diagnosis.

The organization connects all stakeholders – patients, healthcare providers, medical and pharmaceutical companies and politicians to lobby for patients´ rights and importance of prevention and early detection.

A EuropaColon Slovakia patient support center in action

The Swiss Pancreas Foundation (SPF), headquartered in Bern, Switzerland, is an independent non-profit providing help for those suffering from pancreatic diseases. Founded in 2007, SPF has the following goals:

  • To advise and inform the Swiss population on the growing problem of pancreatic disorders and pancreatic cancer. To provide the many people affected, along with their treating doctors, with missing information on specialists, along with centers specializing in pancreatic treatment.
  • To support research projects into pancreatic illnesses.
  • To increase knowledge about pancreatic ailments by organizing medical events and congresses.

To fulfill these goals, the SPF regularly organizes events open to the public, grants scholarships for young health professionals and provides financial support to different research projects.

Most importantly, and at the heart of the SPF, is the World Pancreas Forum. This international scientific meeting, in its third year, will take place in Bern Feb. 5-7, 2020. New research pertaining to the treatment of pancreatic neoplasia is presented. In the future, the World Pancreas Forum is scheduled to take place as an annual meeting alternating between China, the United States and Switzerland.

Inspire2Live (I2L), located in the Netherlands, is an international movement founded in 2011 by the people who also started charity events like Alpe d’HuZes, currently Holland’s biggest charity action. All these charities are targeted toward one single goal: getting cancer under control. To achieve this, the organization also strives to change and improve the way global cancer research is organized and executed. I2L is a platform consisting of approximately 30 patient advocates, bringing together patients, doctors, scientists, the industry and government to work on the challenges to get cancer under control. I2L works for all cancers, but since pancreatic cancer is still one of the deadliest cancers, it is of special interest. One of I2L’s goals is speeding up the process for new therapies in pancreatic cancer. Of particular focus is whole genome sequencing for all pancreatic cancer patients to see whether their tumor cells have actionable mutations for which precision medicine is available and the right choice of targeted treatment. With its membership in the World Pancreatic Cancer Coalition, I2L hopes to expand its network and find new collaborations for common goals.